https://eugs.bitblox.eu

The EGS Real World Data Project

Aims:

  • EGS to create a European-wide platform for collection of data on all aspects of glaucoma management

  • Activities:

  • To establish clear, structured and standardized requirements and guidelines on data elaboration, collection and reporting
  • To create a Europe-wide database with potential for benchmarking using outcomes validated by all stakeholders
  • To assist in policy decisions regarding eyecare, either at European-level and/or in localized geographic settings
  • To promote real-world studies to provide further insights into disease management strategies

  • Achievements:

  • EGS Survey on RWD availability across Europe : First round 2023 complete, new round for selected centers with EMR including other aspects: federated learning, access to data scientists, genomics.
  • Submission of a Horizon Europe Grant: HORIZON-HLTH-2023-TOOL-05-04  EuCanSee: EUROPEAN INFRASTRUCTURE FOR FEDERATED ANALYSIS OF RESEARCH AND REAL-WORLD DATA FROM EYE CARE
  • Work in progress: EGS RWD evidence framework, Core outcome set in RWD in glaucoma
  • Chair
    Ananth Viswanathan
    Ananth Viswanathan

    United Kingdom

    Chair
    Marta Pazos
    Marta Pazos

    Spain